Patient, 21, died because staff did not understand sickle cell disease, inquest hears 

Evan Smith, 21, was forced to call 999 from his temporary bed in a hospital corridor when he grew concerned about his oxygen levels A patient in sickle cell crisis who rang 999 from his hospital bed after being refused oxygen would not have died if medical staff had recognised his symptoms and offered a … Read more

Coronation Street’s Victoria Ekanoye, 37, details hiding her sickle cell anaemia symptoms  

‘I was in a lot of pain but didn’t tell my mum’: Coronation Street’s Victoria Ekanoye, 37, details hiding her sickle cell anaemia symptoms The actress, 37, who was diagnosed in her twenties having previously shown few symptoms, she spent many years masking the painful episodes from her mum  Speaking to BBC Sounds The Sista … Read more

First patient to use CRISPR to treat sickle cell disease says the technology is alleviating symptoms

A mother-of-four, who is the first American patient to have her genes edited with the controversial CRISPR technology to treat her sickle cell disease, says the technology is working. Victoria Gray, 34, of Forest, Mississippi, has suffered from the debilitating blood disorder her entire life.   She was in so much pain at one point that she … Read more