Influencer Ashley Stock reveals daughter, Stevie, three, has died from very rare brain cancer

The daughter of Instagram influencer, Ashley Stock, has passed away, just days after her third birthday. 

Stevie Lynn Stock, three, was diagnosed with a rare brain tumor back in April, which has a 0% survival rate. 

Ashley brought her to the hospital after noticing her ‘rapidly declining motor function.’ 

The 35-year-old mom-of-three, shared the devastating news with fans on social media on Friday, and revealed she was there when Stevie took her final breath. 

Stevie Lynn Stock, the three-year-old daughter of social media influencer, Ashley Stock, has died following a six-week battle with a very rare brain cancer

‘Stevie Lynn Stock. 3 years old. Seed Planter. Miracle Maker. Light Giver. Heart Healer. Blue eyed, dimpled smile, curly haired forever baby girl. Adored little sister, daughter and friend,’ Ashley began on her social media

‘At 1:05pm on May 27th, Stevie took her final breath in our arms. There have been many miracles and countless God moments that I’ll put into words when my heart has strength.’ 

‘For now, I’m overwhelmed with relief that she’s at peace but I’m also feeling crushed by a pain so intense i can’t put it into words. I let it out a bit at a time.’ 

Tragic news: The 35-year-old mom-of-three, shared the devastating news with fans on social media on Friday, and revealed she was there when Stevie took her final breath

Tragic news: The 35-year-old mom-of-three, shared the devastating news with fans on social media on Friday, and revealed she was there when Stevie took her final breath

Stevie was diagnosed just six weeks ago after Ashley took her to the doctor when she noticed her little girl's motor function was declining. Stevie is pictured here with a pal

Stevie was diagnosed just six weeks ago after Ashley took her to the doctor when she noticed her little girl’s motor function was declining. Stevie is pictured here with a pal

Sharing: Ashley has continued to be incredibly brave, raw and candid with her fans throughout the entire ordeal

Sharing: Ashley has continued to be incredibly brave, raw and candid with her fans throughout the entire ordeal 

What is Diffuse Intrinsic Pontine Glioma (DIPG) 

  • “Diffuse intrinsic pontine gliomas (DIPGs) are highly aggressive and difficult to treat brain tumors found at the base of the brain. 
  • They are glial tumors, meaning they arise from the brain’s glial tissue — tissue made up of cells that help support and protect the brain’s neurons. 
  • These tumors are found in an area of the brainstem (the lowest, stem-like part of the brain) called the pons, which controls many of the body’s most vital functions such as breathing, blood pressure, and heart rate.

Ashley continued to explain she wasn’t letting herself let all her emotions out and if she did she ‘didn’t know how she could survive.’   

‘Gentleness has been my most effective approach on grief these last months, gentleness for myself and for all the beloved mourners by my side.’

‘We have complete faith in there being a greater purpose of this tragedy (and it’s already unfolding through your stories of renewed hope), but unfortunately, faith is not a “get out of pain free” card, and that’s okay.’

She ended the caption: ‘I don’t know how to do this, so for now we’ll continue one day at a time held by the grace of God, the support of loved ones and the prayers of strangers who have become friends.’

Ashley accompanied the devastating message with a sweet photo of Stevie holding  a crystal star. 

She also added a video of the toddler playing with her puppy just days before her death. 

The California resident shared Stevie’s diagnosis with fans on April 12, after rushing her to the Children’s Hospital of Los Angeles. 

‘Last night our almost three year old daughter, Stevie was admitted to the hospital due to rapidly declining motor function,’ she shared.

The real-time post saw Ashley explain that doctor’s had found a large mass on her brain but knew nothing else. 

Toddler: Stevie celebrated her third birthday a week before her passing

Toddler: Stevie celebrated her third birthday a week before her passing 

Turn for the worst: Ashley took Stevie to the hospital on April 12 after noticing she had a 'rapid decline in motor function'

Turn for the worst: Ashley took Stevie to the hospital on April 12 after noticing she had a ‘rapid decline in motor function’ 

'A level of soul crushing I can't put into words': Ashley has said the process has been made even harder amid the COVID-19 pandemic. Meaning only one parent has been allowed to be with Stevie while she was in the hospital

‘A level of soul crushing I can’t put into words’: Ashley has said the process has been made even harder amid the COVID-19 pandemic. Meaning only one parent has been allowed to be with Stevie while she was in the hospital 

While waiting for answers, amid the COVID-19 pandemic, Ashley called not being able to be in the hospital with her husband ‘a level of soul crushing she couldn’t put into words.’ 

Two days later, Stevie was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) – a rare form of cancer that has a 0% survival rate. Reports show the median survival time is just nine months from diagnosis. 

‘We are shattered. Broken. Gutted. Somehow my body continues to produce tears and ugly crying has become my only release,’ she penned on April 14. 

‘We will be spending the rest of the week in the hospital to discuss treatments that will make the rest of her life more comfortable. Then we will be headed home where she can be comfortable with her brothers and puppies and we can cherish our sweet girl and heal as a family.’   

She ended the heartfelt message with: ‘But for now we surrender. We surrender to her prognosis and that which we can’t control. We give her the best of everything she needs to be happy and pain free and we teach ourselves and our children how to make these final memories happy ones, ones we can hold onto and cherish, memories that make us smile even if we’re smiling through tears.’ 

While resting at home, Stevie has been surrounded by love from all family members and pets. Pictured with her elder brothers, Wesley, 10, and Sawyer, seven

While resting at home, Stevie has been surrounded by love from all family members and pets. Pictured with her elder brothers, Wesley, 10, and Sawyer, seven 

Three generations: Ashley's mom came down to spend time with her daughter and granddaughter during Stevie's final days. Seen cuddling them both

Three generations: Ashley’s mom came down to spend time with her daughter and granddaughter during Stevie’s final days. Seen cuddling them both 

Ashley and Ben are also the parents to sons, Wesley, 10, and Sawyer, seven.

A recent photo saw the young boys lie down and watch their sister sleeping.  

The blogger also thanked her mom earlier in the week for coming to support her during this horrific time. 

‘Having her here has given me permission to break open in ways that only a mother can pull out of you. Her comfort, the way she makes sandwiches, her familiar smell and her soft back scratching have always been a comfort to my aching soul,’ she wrote. 

‘This video is from a couple days ago, Stevie saving a rare lucid moment to welcome her grandma—she had been waiting for her. Today, Stevie is non responsive but still breathing. We are huddling close to her and filling her with endless love and affirmations that she is cherished, that she will be at peace, that she will be pain free, that we will miss her but we will celebrate her every day for the rest of our lives until we are with her again.’ 

Family: Ashley shared that ever since her diagnosis, Stevie had continued to worsen drastically

Family: Ashley shared that ever since her diagnosis, Stevie had continued to worsen drastically 

Candid: Ashley is known for sharing the good and the bad times in her life with fans online